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Augie48 |
this site
Oct 20 2007, 6:22 AM EDT
thanx for this site, I am undiagnosed but it looks like to me I am aspergic, all the reading and self tests point in that direction, I am 59 in November, so have missed all the government and education attention, mostly avoided, laughed at, discounted, by family, cohorts, hard to make good friends. had a cerebellar stroke 2 years ago , had a wonderful physical therapist who taught me to walk again, I really liked the modified maneuver that rolled the calcium rocks back into the proper place in the ear canals. must have been vestibular therapy huh. wonder if it had anything to do with the brain differences of autism or aspergers? Augie
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KED |
1. RE: this site
Oct 21 2007, 2:43 PM EDT
Hi Augie! You're very welcome. :) I'm sorry you realized all this after so long. But at least now you know. It was a vestibular therapy...I know what maneuver you are talking about, just cannot think of the name at this moment. I don't think that had to do with the brain differences of autism or aspergers, though. However, some people on the spectrum have benign positional vertigo which is the 'crystals' being out of place, but not the stroke. I'm glad you are recovering.Luv, Kris Do you find this valuable? |
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Augie48 |
2. RE: this site
Oct 22 2007, 8:27 AM EDT
"thanx for this site, I am undiagnosed but it looks like to me I am aspergic, all the reading and self tests point in that direction, I am 59 in November, so have missed all the government and education attention, mostly avoided, laughed at, discounted, by family, cohorts, hard to make good friends. had a cerebellar stroke 2 years ago , had a wonderful physical therapist who taught me to walk again, I really liked the modified maneuver that rolled the calcium rocks back into the proper place in the ear canals. must have been vestibular therapy huh. wonder if it had anything to do with the Sbraindifferences of autism or aspergers? Augie"typing away and lost my paragraph, the cerebellar stroke included also the inner ear problem, the maneuver resolved much of the vertigo, the therapist over two months helped me learn to walk again, was able to retire from state mental hospital early tho it was many years, too young for social security, but did have a good retirement package from the state of Florida.was clumsy as a kid, shy, socially uncomfortable, enjoyed 3-11 shift to avoid office politics. it also gave me something to do rather than social climbing, or parties, got a college education, thanks to my parents, got married, kids , retirement. I think i probabley have what is called residual aspergers, since I somehow survived. I wonder if the clumsiness is perhaps cerebellar degeneration, keep losing what I type, the doctors hardly ever have more than 5 minutes to talk, and then have no interest in your opinion or research. at the time we were not considering aspergers, The neuropsychologist did a battery of tests, but was concentrating on memory, he did point out that I had a problem with visual memory, my research shows there are imaging tests to discover etiology of face recognition and aspergers. I have no problem recognizing people I know. It was just in the test remembering where so and so cartoon character was in the picture. Augie Do you find this valuable? |
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KED |
3. RE: this site
Nov 20 2007, 7:47 PM EST
Hi, some people with Aspergers do have trouble remembering when it comes to cartoon people. Actually very common. It does sound like you have high functioning Aspergers for being married and everything. Good for you :) Sometimes 2 high functioning Autistic people will live together and be watched over and checked on a lot. If you have ever seen the movie, Radio, the story after it was the 3 brothers lived together with supervision in their own house...this is true story. With my functioning level on other areas, I wouldn't get married, and I'd want to live in my house because I don't like change and then the other person on the spectrum would stay there too...but, me, I don't think any of that. I don't know. A lot of Autistic people, it is the inner ear problems they have a lot, but haven't heard of stroke before so I think that was just something that happened. The inner ear is just for the dizziness. Luv, Kris 2 out of 2 found this valuable. Do you? |
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Augie48 |
4. RE: this site
Nov 21 2007, 5:47 AM EST
thank you for your personal replies, I like this sort of forum, if I have AS, it gives me time to think and then post reply, I have problems keeping up with chat or IM. also have a problem with eye contact, so this venue is conducive to real communication, do not have to worry with gestures, body language, social cues etc. both my wife and I have problems getting along with others, maybe that is why we stay together, even tho nugh we have continuiing communication problems, there is something positive to say for co-dependance ,sp? She thinks she may be aspergic too. neither of us like the term aspie, or ass-burger, I think she does not like aspergic either, like casting aspersion. At present I have yet to return to the work force. The state of Florida does not continue to pay a share of health insurance when you retire, The insurance would have been almost half of the retirement pension. we are thinking of both working again, if we did and got health insurance , what is your take on an official dx? have read much point of view either way. when we discuss it with others you can see the glaze in their eyes and looking for any way to change the subject. We are both very distrustful of insurance and government. The internet is a wealth of info if you can follow thru and use discernment Augie
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Pegomyhart |
5. hearing things wrong
Nov 22 2007, 7:07 PM EST
I would like your opinion on how you perceive people's attempts to communicate, especially your family members. Have you taught them how you want them to speak to you? Do you have more problems communicating with females? Are you super sensitive to words that to most folks are neutral?
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Augie48 |
6. RE: hearing things wrong
Nov 23 2007, 10:55 PM EST
I have tried three times now to respond to pegomyheart, but somehow keep eventually hitting the wrong key, and losing my comment before it is posted. here goes again, a triple pointed question, yes I think I misperceive communication attempts, I think in public education you get a few good teachers, by the time you get to college professors they get kind of burned out. am I a good teacher? I have been a nurse in the mental health field for 30 + years, , I can't judge myself, again being in government service had its ups and downs. family? I think more than a few of us are aspergic, as you know it was not a named dx for years ,just now getting better known, still not officially diagnosed. I don't think I have ever taught my older brother anything, he always had the morally superior position, you never get older than an older sibling. females? I had a mother, a sister , aunts, female teachers. not too many female girlfriends, classmates , college was difficult. have managed to stay married for 34 years, so do not have the problem of finding another mate. yes I think I am sensitive to words that are neutral to NT's. I recognize you from dailystrength, my user name there is augie59, my age, augie48 refers to my birth year. thank you for your response. have you seen youtube with Amanda? Do you find this valuable? |
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KED |
7. RE: this site
Dec 18 2007, 5:21 PM EST
You're welcome :) I do too... it is much easier than speech. Believe me, when I create these pages, a lot goes into them. I use my pic/reading aloud, etc. program to help me see how other's who comprehend it are going to see it in their view. I don't really like the term either, but that is also an Autism thing -- The way it sounds, which is sort of like Pego says in "hearing things wrong"... I think it would be beneficial especially with SSI disability, as well as a relief for knowing that all this stuff you wondered about yourself makes sense, well, yes makes sense finally! Its a relief. Go ahead and do it.Kris 1 out of 1 found this valuable. Do you? |
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KED |
8. RE: hearing things wrong
Dec 18 2007, 5:22 PM EST
Hi, my answer to this question is in the similar thread, almost the same that you put up.Kris 1 out of 1 found this valuable. Do you? |
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blach |
9. adult help
Dec 29 2007, 11:55 AM EST
My name is Spencer and my wife and I are contemplating converting our beautiful north Texas ranch into an employment based residencial community modeled after the village concept. I am a vocational teacher, have my special education endorsement, and have worked as a vocational rehabilitation counselor. My wife is a speech language pathologists and serves on the autistic evaluation team for several school districts and has worked with autistic children through out her career. Together we have realized the need for services for adults to continue to grow in an environment where "quality of life" is the most valued consideration. We are in the planning stages. Areas that we anticipate working with will include: raising pets and animals, raising fruits and vegetables, woodworking, antique restoration, vehicle detailing, work in our Bed and Breakfast and recycling. We welcome input from adults with autism, parents or grandparents or school/transition specialists. Please email me at agemployment@aol.com
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KED |
10. RE: adult help
Dec 31 2007, 2:43 PM EST
Hi, that sounds great! I will def. email you with new ideas and also, I happen to be writing chapter on that in the book I'm writing that is almost done. It is called Autism: Life in the Prism and will be available once published through major bookstores like Barnes N Noble, etc. Let me know how it is going by posting here :)Kris 1 out of 1 found this valuable. Do you? |
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Augie48 |
11. RE: adult help
Jan 1 2008, 8:35 AM EST
when my wife accompanied our daughter to the pediatrician, the Doctor noted that our daughter may be in an "oppressive" situation, the Doctors husband is a neuropsychologist. My wife made inquiry's about our daughters possible aspergers. My wife sent him an email, he responded. $165 an hour, we will forward this info to our daughter, she is having marital problems, so agrees to gather evidence to prove she is "not crazy" in the event of any legal issues if she decides to divorce or encounter any custody problems. I am wondering if it would benefit me to undergo such exams , if I decide to apply for SSD. At this point we are self-pay, my daughter does have insurance for herself, I saw a neuropsychologist when I had my cerebellar stroke with inner ear complications. had a set to with long-term disability insurance co. I retired, they tried to get their money back, referred me to SSD. I recovered before needing it so withdrew my app, SSD counted it as a denial. The long-term disability insurance threatened, promised to renew attack if I later applied. however I am thinking if it is a new diagnosis they can back off. Complicated enough? My brother did some reading when I asked him to remember back to our childhood, he does recognize some traits but does not think it is a perfect fit, "you had friends" People ask about you at our college reunion. Do I seek official DX or just continue to get on? I know only I can decide, but input? 1 out of 1 found this valuable. Do you? |
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KED |
12. RE: adult help
Jan 8 2008, 3:25 PM EST
Hi Augie, thats a lot... wow. I personally think maybe you should get a diagnosis, as it might give you relief in finally knowing for sure, that all the stuff you felt and went through really had to do with Aspergers Syndrome and is not some mystery anymore. Let me know what you decide. Also, I have SSI disability myself. Also, just because someone has friends doesn't mean they don't have an Autism Spectrum Disorder... And besides, Aspergers is 'not a perfect fit'-in fact its one of those not perfect fits so don't let that discourage you. Smile :)Kris Do you find this valuable? |
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blach |
13. RE: adult help
Jan 9 2008, 6:21 AM EST
Anxious to here about your book as we need more resources. However, I was disappoined in the fact that after posting threads on a few of the major web sites about our hope of opeining a place for adults with autism we had almost no response. Maybe we are going down the wrong road. We can always get limited ability clients and maybe there is just not the interest in the autistic world to see my vision of a village that draws the NT world to us instead of vise versa. What I really need to make this work is probably a retired couple that would like to come and help us get this going. I personally thought there would be an overwhelming response, but I guess one never know and has to listen to the Lord and where he is leading us. Spence
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Augie48 |
14. RE: adult help
Jan 9 2008, 9:03 AM EST
appreciate your input, yes I realize it is not perfect fit, My wife has a well read friend whose husband is ADD, he is a successful grammer school teacher, written childrens books with wifes help, who studied law years ago, I think I will establish correspondence with him re: differential dx between ADD/ADHD and AS or ASD. I think he may have been diagnosed before the AS nomenclature, re: official dx, his wife cautions that insurance companys may defraud you, our experience exactly. I think the insurance cos. applaud nationalizing mandatory health insurance, they'll make a further killing, health service will really go down the tubes even further. even when I asked another neurologist in another state about aspergers, he had never heard of it. I rant ad nauseum. I think this is a sign of some neurological difference. I appreciate your encouragement to get a dx. still wary of insurance co. and government mandates.
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Augie48 |
15. RE: adult help
Jan 9 2008, 9:08 AM EST
tell me about your need of retired couple. I am retired registered nurse in state mental health hospital, see my other posts re: cerebellar stroke with inner ear comorbidity, and self suspected AS . My wife likes to listen to the Lord and where he is leading us.
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KED |
16. RE: adult help
Jul 11 2008, 7:19 PM EDT
Hey, don't know where blach went (aka Spence). Maybe I'll email him and let him know there is a post by you Augie so he can post on here again.Kris Do you find this valuable? |
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blach |
17. RE: adult help
Jul 11 2008, 9:29 PM EDT
I am still here, but we still have had no interest in our idea of a residencial work site on our ranch based on a village concept. So we are thinking about turning it in to a Bed and Breakfast for the regular people. i was just amazed after hearing how tuned into the internet the autistic community is that we would not have had one person write and say they would be interested. So maybe we are not destined to work with this population. Spence
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KED |
18. RE: adult help
Jul 25 2008, 1:48 AM EDT
Hi Blach! (Spence)Glad you're still here :). Bed and breakfast for typicals can be good too... maybe you can say 'Autism friendly' on the flyer or something...?? Just an idea so you could attract the attention of people with Autism who would want to stay some place just to get away from everyday life and relax. Hugs, Kris Do you find this valuable? |
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angryticked |
19. RE: adult help
Sep 20 2008, 10:49 PM EDT
i hope you can get diagnosed one day soon so you can know for sure whether or not you have it
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