YOU CAN BRING LIGHT WHEN DARKNESS COMES!!!!!
My book available here:
http://stores.lulu.com/autismbook1
http://www.autismspeaks.org/community/resources/books.php

PLEASE CHECK THIS OUT!!!!!!!! &

About Gebauers Pain Ease
http://gebauerspainease.com/Emergency-Medicine.aspx
Some quick testimonials about it:

1. Pain Ease has worked very well for me when I donate blood and now my father is successfully using it for his dialysis treatments. This product is a godsend.

2. Have IM injections daily for Multiple Sclerosis and would not without this spray!

About Buzzy!
http://buzzy4shots.com/
Some quick testimonials about it:

1. Buzzy helping one Autistic child with injections- I held my arm around him with the Buzzy, and we got the shot in, and I honestly don’t think it hurt much. He cried afterward, but in that sort of melodramatic way (he kept looking in the mirror!) that didn’t last long (over within 2-3 minutes). Previously, he would have been in hysterics for half an hour.

2. I loved it for IV's because it doesn't constrict the veins down like cold spray but it gives teh analgesic effect kids need... I don't have 30 minutes to wait for Elamax.

3. I use him for almost every IV we do on my floor. The children love him and I have even had an adult request him. The nurses on my floor love how big he makes the patients veins. Even our IV team requests Buzzy now.

4. A trial in adults for IV starts presented at the IASP in Scotland 2008 found that Buzzy®significantly decreased pain. A trial in children needing IV starts in the emergency department has just been completed, with significantly decreased pain by child and parent report. Buzzy® has been used for travel immunizations, fertility shots, and finger pricks, splinter removal, and flu injections with good results.

I JUST got these products and will add my own review since I keep having to have draws, etc. Lots of the docs say that my veins are 'shot' and they are tired because of all the stress thats put on them for several tries and many ask me if I have a clotting disorder which has been ruled out. My IV's will infiltrate and my heart rate will flash up to 150 bpm and I'll get so sick that they've brought up the idea of using a port if they can't access the vein/s without the intense pain and because of how small they are. I had a nurse that tried to give an IV in the top of the hand near the wrist and 4 nurses came running because they didn't know what was going on; until they got there. They say even the couple good veins left are small and sensitive. They said, "I wish we had numbing spray or numbing sticks (and don't know why we don't provide them) and wish there was something that could block the nerves some way and something that could make the veins a little bigger for getting the IV stick in". WELL, there are now two products I am going to try that for the price is VERY worth it in the reviews and the nurses will be thrilled if it works or helps in any way. I will find out soon as I'll be getting more blood draws after I'm put under anesthesia w/ an IV (which we will use the above products for of course) to check for nerve damages in my neck, right side of body and spine, as well as MS.

FIre FIghters and EMt's your section is labeled in RED. --- Hospital staff/doctors/dentists, read these tips too...very important for you guys as well...very important! FireFighters and EMTs read the other stuff on this page, as it gives 'child-friendly' words to use for medical terms, etc. Important as well.


** Higher functioning kids on the spectrum will probably freak out at the hospital just like other people who might be lower functioning, because of the tons of people, the noises, the unfamiliar things, etc. So many times doctors will say 'its just anxiety; see you can even tell by the way he/she is acting' No, wrong, if the child is complaining listen to them; autistic people can feel when something is wrong; they feel it the best. Of course they freak out in the hospital, it doesn't mean what they are feeling is then in their head.



Hospital visits/doctors/dentists etc... can be a traumatic experience for any age person with autism. Many times, the doctors do an automatic restraint system on the autistic person without trying other methods because they are simply "not aware" of autism and how to deal with it.

ALSO: scroll down...

A play “medical kit” may also be helpful. OR ones that look a little more similar to the "real" equipment, like this piece in a set: http://www.lillianvernon.com/catalog/product_display.jsp?pdId=1716&name=Medical+Set+%26+Lab+Coat&parentCatId=2&catId=246&subCatId=82 This is the best!!!!! For preparing for real looking ones :)

When coming to an ER, get into a room as quickly as possible....tell the people at the desk your child is autistic and cannot handle all the people.

Most places require paperwork, especially new patients, so PLEASE request the papers to be sent to your home as waiting while doing the paper work is a difficult and unneccesary time wait and overstimulation...plus gives more time for anxiety.


Great Info. video 4 DENTISTS!: FINALLY FIXED!!

I'm very lucky because I have one of the best dentists! Be sure to check out your dentists :)



Tips:
1. The dentist uses the weighted vests over my legs to calm me and keep me from involuntarily moving.
2. Also, gustatory and tactile defensive reactions... Inserting tools or even looking in the mouth can cause gagging and sensation overload as well as involuntary hacking of spit.
3. Make sure the suction thing is there if giving a shot after a ton of numbing, the tiniest drop on the throat causing choaking and the involuntary hacking of spit. It is not on purpose...it is like a sneeze.

<Print this page off and give to your doctor when going to a visit; also if can be done before, preferable:)>

ALSO....
Hospital visits can be traumatic for any age person with autism. Most of the time, people just autimatically restrain patients before trying other methods because they are simply not "AWARE" of autism and what it means.


**sedation or general anesthesia may be recommended to make delivery of that required treatment possible in a safe and comfortable manner**---for more difficult procedures or treatments. The lower hemisphere is 30 X more sensitive to autistic people, so procedures in that area are TRAUMATIC.



Autistic children/adults too, who are verbal or who may be nonverbal but are definitely able to understand things, use soft words to describe techniques used by doctors, as well as for other children who are typical:

Blood Pressure Cuff: Give your arm a hug
Stretcher: Bed with wheels
Anesthesia: Sleepy Medicine

Have a visual pain scale:

ALSO...

Autistic people view the medical equipment as extremely terrifying and painful, even a stethescope...autism/child friendly equipment on staff is also extremely beneficial and really does change the view to a person w/ autism, making the stay for everyone at the hospital a little less "loud and screaming, etc." EX: These even calm down the adults....It really usually isn't a matter of emberassing for a person on the spectrum because people on the spectrum have what others call "child like qualities" These would be interesting and make everything a little less intimidating; Autistic world is viewed much like an infant or young toddler.

A person with autism should have a psychologist or child-life specialist working throughout their stay at a hospital, even if the autistic person is an adult--adult autistic people need the same sustenance as a child...ASK for ONE, also psychologists know autism and how to help...they work at the hospital.


EX: When an eye is coved with a patch, the child may react very negatively. Small scale bribing is acceptable to calm the child so much that training or testing can be continued. In this situation we learn what is the child's near vision acuity with single symbols. See the video.





One apsect of the role of a Child Life specialist is to teach young patients about medical procedures in order to make their hospital visit less stressful. Here, Cynthia Fitchpatrick, Child Life, uses the teaching doll to demonstrate to Children's Hospital patients what to expect during and after their surgery.












EMT and FIRE-FIGHTERS (firefighters, use all these same suggestions and an extra tip for you, Tip 10. EMT's tip 10 is also one you can use although geared more towards firefighters.

EMT & Firefighters:

Tip 1: Autistic people will most likely be frightened of EMT because of the following: the vast majority of them at once, Visual-disillusion meaning being frightened of the specific clothing such as the pants that firefighter EMT's wear because they are baggy and blow in the wind (It is a dis-illusion, too much sensory input through autistic peoples eyes)

Tip 2: When you are asking what is wrong with the person who has autism spectrum disorder, be sure to use a quiet voice, sometimes talk very little and when you do talk use a Robotic (human but a little robotic), singsong tone of voice (rise and fall of the voice pitch: (sngsông, -sng)) which is soothing to autistic people for they are very hightened to repetition, etc. LOOK @ VIDEOS PAGE UNDER SILENT FALL for ex: Also, sound like you aren't really worried, just non-challant.

Tip 3: Also, when asking what is wrong, point to the different body parts when asking, so the autistic person can respond, it is visually helpful because when autistic people get really upset and worried, they can literally almost forget words or forget what is wrong with them.

Tip 3 1/2: When using thermometers, spirometers, any equipment have another EMT doing it to their partner so Autistic person sees they aren't going to hurt them.

Tip 4: Also, when ok to do so, talk to each other about everyday things so as to relieve tension.

Tip 5: Always carry something, like a glitter wand, or a distractor; this will calm the person down.

Tip 5 1/2: If putting in IV, try to NOT put in middle of arm, commonly used place as that place is EXTREMELY sensitive in autistic people; other places on the arm like side of wrist sometimes will not feel really anything...good way to go most the time... This is also a better place because of stimming and Autistic people tend to move their arm and then the little tube in the arm will make irritation and pain, as well as __infiltration?__ (thinking of the word where the thing gets the fluids not in the vein but outside of it). And, put in the solutions slowly as they can cause pain in most Autistic people if the saline, medications, etc. go in. Really wrapping the site up can help as well. (Not really wrapped up in this picture but like a lot of little kids have it wrapped up, sometimes almost looks like a cast)
ALSO: This product is great so there is not all the re-poking and pushing, etc.

Tip 6: When the person gets to the hospital, immediately tell the doctors they need a psychologist on staff and stay with the autistic person for a few minutes while they are getting settled it...it will make them feel safer and get a sense of things being the same.


Tip 7: Either light or deep massage helps a lot!

Tip 8: The sound of the fire engines or ambulance or police cars are very loud and overwhelming to an autistic persons' senses. Carry along cotton/earplugs so can place in the persons' ears so the sound is not so overwhelming.

Tip 9: Be patient, also, if they are stimming, like making noise, it actually is good for them as it vibrates the inner ear creating balanced autonomic reflexes in the brain to coordinate balance and self-regulation...don't be alarmed.


Tip 10: Firefighters, the person with autism may not want to come out from under bed if smoke etc. because of the alarm and everything looks different. Also have cotton and autistic people will also be afraid of the attire that firefighters wear. You too also have something distracting along in your pocket. Use all suggestions above...

ALSO for you firefighters & EMTs:

Talk to ur local fire dept., even EMT's about your autistic child and possible practice run through programs...